FINN, living with Duchenne

FINN, living with Duchenne


Support, By Your Side

A Duchenne muscular dystrophy (DMD) diagnosis can be difficult for both the people living with it and their families. The disease may also bring about a desire to learn more. If you or a loved one has been recently diagnosed, you may have questions and decisions that need to be made as you consider the disease, what it means for your loved ones, and the decisions that lie ahead.

SareptAssist is a support program available in the U.S. that pertains to Sarepta-approved therapies. It guides amenable patients and their families through the treatment journey and educates those who want to learn more before making a decision. 



Start Here. We’ll Be With You Throughout the Journey

When you contact us, a dedicated SareptAssist Case Manager with knowledge of rare diseases, insurance plans, and healthcare networks will work with you to provide one-on-one personalized support. 

Your doctor is your primary resource, but your Case Manager will be a key contact for additional questions on coverage, treatment, and resources.


Watch Our SareptAssist Team  
Describe How They Support You

“We are here for one reason: the Duchenne family. It is our fundamental goal to empower you with information and support that may help manage the stresses of starting a new therapy so you can focus on what’s important—life with your child.” —Dan, VP, Patient Services

Ready to Learn and Connect? 

Whether you have questions about Duchenne, treatment, insurance access issues, we are ready to help you learn, connect, and get answers.

Download the form so you can get the conversation started!


Navigating the Process

Once you and your doctor have decided on the appropriate treatment, SareptAssist offers a trusted resource as you navigate Duchenne. Drawing on extensive experience in the rare disease space, our team can provide guidance on insurance benefits, treatment logistics, and financial assistance options. We are here for you and can address any questions you have along the way.


Get a guide on navigating the insurance process.

Gaining access to Duchenne muscular dystrophy (DMD) therapy: Your guide to understanding treatment is a resource designed for families living with Duchenne. It covers details about the insurance process, features real stories about different patients’ experiences, and much more useful information.

SareptAssist Is Here for You

Get connected! Call 1-888-SAREPTA (1-888-727-3782)

We’re available Monday through Friday, 8:30am – 6:30pm ET.

Spanish-speaking Case Managers and interpreters of other languages are available.


Stay Connected

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