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FINN, living with Duchenne.

Uniting the Duchenne Community

We understand the importance of joining together as patients, families, caregivers, and health care professionals to share knowledge, resources, solidarity, and hope.  

Welcome to the Duchenne community! This is the place for barriers to be broken, wisdom to be shared, progress to be celebrated, and limitations to be overcome. If you or someone you know lives with Duchenne muscular dystrophy, this is the place for you. We’re glad you’re here.

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DILLON, lives with Duchenne.
Lives for playtime.

Dylan

Understanding Duchenne

If you or someone you know has received a Duchenne diagnosis, you may feel anxious and overwhelmed. While a Duchenne diagnosis will mean adapting certain parts of your life, a fulfilling and meaningful life is still possible. Learn about the options and possibilities that lie ahead, and how to connect with the community to support you along your journey.

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ETHAN, lives with Duchenne.
Lives for the perfect palette.

Ethan

Navigating Your Management Options

Keeping up with and understanding the various management options for Duchenne can be challenging, but we're here to offer clear information designed to support your decision-making, regardless of where you are on the Duchenne journey. Learn about currently available options and talk to your doctor to determine whether one may be right for you.

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CALEB, lives with Duchenne.
Lives for cheering for his team.

Caleb

Adapting to Life with Duchenne

Living with Duchenne means learning how to manage new obstacles. Each day, we're inspired by how patients and their families have found innovative solutions, ranging from self-care to mobility, to help them adapt. Learn from others living with Duchenne and share your own expertise and life hacks.

DNA

Explore ongoing reasearch

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Understand the potential and limitations of clinical trials

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Hand hearts

Discover resources in the community

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Stay Connected

Sign up to receive the latest information and community resources and we'll send you a Sarepta Caregiver Journal at no charge.

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